Why was the database created?
Creation of a health data warehouse linked to the SNDS in order to obtain a high-quality database on COPD / Asthma and ILD conditions and to be able to conduct high-quality research
What data does the database contain?
- Population of interest
- Patients from the Colibri-Asthme, COPD and ILD databases set up by the Association pour la Complémentarité des Connaissances et des Pratiques de la Pneumologie (Association for the Complementarity of Knowledge and Practices of Pulnomology)
- Age group
- Older adult (65 and over) Adult (18 to 64)
- Data category
- Medical and administrative data
- Data collection methods
- eCRF
How is the data managed?
- Data retention period
- 10 years
- Database documentation
Why is the database legal?
- Data controller
- Clinityx
- Legal basis
- This processing of personal data is carried out for the purposes of the legitimate interests pursued by Clinityx as a consultancy firm specializing in real-world data analysis, including of the SNDS, and by the Association in the context of its research mission in pulmonology The derogation from the prohibition on processing sensitive data is based on the task carried out in the public interest of research in the health field.
- Data transfer outside the EU
- No